Understanding what suffers people living with chronic illnesses is often complicated. A recent study puts the daily activities of those who suffer into numbers inflammatory bowel disease (IBD) they are interrupted.
Within the EEA there is Crohn's disease, ulcerative colitis and indeterminate colitisAll are chronic inflammatory diseases of the gastrointestinal tract, although their manifestation differs from person to person. In Argentina, it is estimated that more than 20,000 people live with IBD.
The study, conducted by the More Life Foundation of Crown and Ulcerative Colitis and the European Federation of Crown Associations and Ulcerative Colitis, data that can help to pinpoint what IBD meansAmong them, it is clear that:
-80% of patients may not be present at events during outbreaks;
-50% can not maintain an intimate relationship;
– about 40% should discontinue their day-to-day activities due to symptoms.
"Making an active social life is usually a great difficulty for most patients," said Luciana Escatti Penalosa, president of the Foundation. Some of them Symptoms are a source of shame; others such as diarrhea, abdominal pain, fever and vomiting prevent normal life. "
Penalosa, the mother of a Crohn's disease girl, explains that even in the lightest cases, there is always a fear that there will be any symptom at all times that can leave them "to the fate of the place and the company, which they are. "
Explains that reality is very unfavorable to people with visceral diseases such as IBD, as they are physically invisible but lack organic health, which limits its daily activities and social and labor activitiesIn general, people with IBD only cause suspicions that something is wrong with their health, because they begin to isolate themselves socially, by suddenly having to interrupt a conversation, eat or get off the bus in search of a bath.
For several reasons, people with IBD They take a long time to talk to others about the disease: it's hard to find the words to explain what it is because of the shame, the fear or even the grief that reminds them that they have a chronic illness.
while Inflammatory bowel disease (IBD) is not treated, is treated with various types of drugs (corticosteroids, localized anti-inflammatory drugs, immunosuppressants and biotechnology) aimed at reducing the severity and duration of symptoms and avoiding or delaying relapse or complications. In this sense, specialists recommend trying to adapt the routine so that patients can continue with social life because it will make them feel better.