A Victorian woman has talked about the 12 months spent in "complete agony," unable to walk or hold her newborn daughter until a rare skin disorder ravaged her hands and legs.
32-year-old Nicole Price of the Mornington Peninsula has been diagnosed with fractured pustulosis (PPP) – an extremely rare form of psoriasis – within minutes of the birth of his daughter Scarlett in late 2017.
She described the feeling that crawling crawled under my skin while her arms and legs fell apart in front of her eyes.
PPP causes infected pustules and blisters to form on the skin that breaks easily, as well as deep cracks and flakes.
The illness is so severe that a mother of six years has lost her ability to walk or use her hands and has been in bed for six months.
"It was absolutely destroying the soul, I'm a happy, funny mother, but it destroys my life," she said.
Desperately asking for another daughter, Nicole and her fiancé, Russell Sinot, became pregnant with her second daughter, Scarlett, in 2017.
"A minute after Scarlett's arrival, psoriasis came at once," Nicole said.
"I was lying on the hospital bed and feeling that feeling on my feet, which she thought might have been a ringworm or a fungus infection.
Nicole then did not realize it, but this moment would cause illness that would last for more than 12 months.
After the happy family brought Scarlett home, Nicole said that her legs and her hands continued to "numb" and became more dry and sensitive.
"I did not think it was serious, so I did not check it properly," she said.
But in a few weeks, little Scarlett suffers a series of seizures and is hospitalized in a critical condition.
The doctors told her that the stress of the baby's illness led to Nicole's PPP.
Nicole's skin worsened quickly, first from her hands, then from her legs.
Bubbles and small wounds began to form in her palms, which were prone to crack at the slightest touch.
It did things like cleaning the house or getting up at night to nurse Scarlett, impossible.
"I could not bathe because if I tried to wash my hair, the shampoo would burn my hands," she said.
"I'm a really energetic mother, but it stopped me playing with my kids or even holding my hands, which was heartbreaking."
The condition was also hampered by Nicole.
"People will see me on the street, as if I had leprosy," she said.
"I was so disgusted with myself and ashamed, people were horrified when they saw me at the cash desk, trying to get money."
The condition even spread under Nicole's nails, heightened the agony he felt, and then he stood up, making it impossible to walk from one end of his house to the other.
"The pain was incredible, it felt like I was walking through a broken glass, but my pain pierced my body in a way that was difficult to explain," she said.
"It will take me 20 minutes to get from one end of the house to the other, just to move.
According to Nicole, sickness has made her feel "sick, dirty and itchy."
"It was like a bug in my skin that just crawled everywhere and biting my skin," she said.
Nicole would strap his hands and wear boots in bed because he could not take off his shoes without breaking his skin.
THE ASSUMPTION OF THE AID
She spent thousands of dollars on creams, doctors and treatments, soaking her limbs in vinegar and drinking aloe vera, subjecting to UV phototherapy and eating a plant diet.
"I've also read that drinking your own urine can help the symptoms, and I briefly looked at it, but I did not," she said.
Finally, the dermatologist prescribes to Nicole a dose of medication usually administered to cancer patients in an attempt to help the symptoms.
"The medicine made me sick and soften my hair, but it finally started working," Nicole said.
In combination with her medications, Nicole thought she would try Moo Goo, a natural Australian cream for psoriasis, found in the local pharmacy.
According to Nicole, the $ 18.50 thick cream tube is a miracle for her physical symptoms.
"When I put it on my rough, cracked skin, she just sneaked and felt unbelievable," she said.
"He stopped the pain from psoriasis and helped me again to use my hands – it was the sky."
Now, in remission, Nicole hopes to spread awareness of psoriasis to other sufferers so that the community does not stigmatize them so much.
"I am very ashamed and embarrassed by my illness that I want to help other people build their trust," she said.
"I know it looks terrible, but when you have it, the soul is crushing.