Saturday , November 28 2020

You can live with lupus



With proper treatment, the patient lives as long as anyone who has no inflammatory and autoimmune disease that affects all organs

Systemic lupus erythematosus is an inflammatory and autoimmune disease that affects all organs. When diagnosed in a timely manner, it may be possible to stop its progression with good prognosis for patients.

Statistics show that in Yucatan it is represented by 0.06 percent of the population, ie between 2500 and three thousand people.

Dr. Jacinto Herrera Leon, Rheumatology Specialist and Director of District Hospital No. 1 Ignacio García Telez ”of IMSS explains that contrary to what some may believe, there is no increase in new cases of lupus in the entity, although the number of people with the disease served by the institution has increased.

As he explains, this is due to the fact that there is a significant increase in beneficiaries as a result of the migration of neighbors from other countries.


He states that Yucatan It ranks first in the world in 2011 for rheumatoid arthritis, with the incidence being 2.8% of the population, more than double the national average and 1.3%. Lupus, a rheumatic disease, however, remains at 0.06%.

Dr. Herrera Leon states that the condition affects people of productive age, that is, between 20 and 40 years, and mainly women in a ratio of 9 to 1 to men.

Taking into account that 40% of women are heads of household, one can understand why the disease has an economic impact on the home.

The professional adds that lupus erythematosus affects the skin, brain, kidneys, liver, eyes, lungs, heart, blood vessels and intestines, so timely diagnosis is essential to stop and avoid life-threatening damage to the person at risk,

It is an autoimmune disease, which means that the body's own cells attack the body in error.

30% of patients with lupus have renal involvement, which obscures the prognosis for life.

It is known that in the onset of evil, there is a genetic component that remains 'asleep' until an environmental factor 'awakens' it.

Many times this triggers the exposure to ultraviolet sunlight. So can infectious or viral disease or the consumption of certain medicines.

A sign of lupus is the redness of the face "in butterfly wings", that is, in a pattern that does not cover the entire face.

Also, oral ulcers (redness), involvement in small and medium sized joints, anemia and a decrease in red blood cells are symptoms that can signal the disease.

The diagnosis is clinical and confirmed by blood tests, biopsies – if the doctor thinks so – and a magnetic resonance imaging, among others.

treatment

Dr. Herrera Leon points out that current treatments allow the patient to survive for up to 10 years in up to 95% of cases, which does not mean that they will be killed after that time because if they continue to medicate and take care of their health, they can live as many years as any other person without the disease.

The most important thing is to stop the progression of the disease before it reaches a severe phase.

The doctor assures that at IMSS they have all the necessary medications to visit systemic lupus erythematosus and that patients should only take them, if they are right, to go for a consultation to get a diagnosis and treatment. – Iris Chebalos Alvarado

Everyone can suffer from an autoimmune disease

In diseases such as lupus, psoriasis and hypothyroidism, it is the immune system that attacks the body because of guilt, which leads it to conclude that foreign agents are present and must eliminate them.

It is estimated that 20% of the world's population suffers from some kind of autoimmune disease, so although these conditions do not reach very high numbers individually, together they make up a significant number.

Experts on the subject explain to the magazine that human beings have a very aggressive immune system, as required, to protect the body from threats from many bacteria and viruses. Usually, when a system detects something strange in the body, it reacts to reject it without affecting its own cells and organs.

This mode of action changes when there is an autoimmune disease as the system stops recognizing what is part of the same organism and responds by attacking it.

Genetic factors, as well as environmental and cultural factors (lifestyle, diet, etc.) predispose to the emergence of immunological failures.

In this case, infections, cancer, exaggerated reactions (allergies) and autoimmune diseases occur.

Hypothyroidism, psoriasis, lupus, rheumatoid arthritis and vitiligo are some of the most known autoimmune diseases in the population, but their total number is hundreds.

According to experts, lupus is rare in Yucatan, as well as in Mexico and around the world.

One of the reference centers for the treatment of lupus in the country is the Salvador Zubiran National Institute of Medical Sciences and Nutrition in Mexico City, which treats about two thousand cases, a smaller figure if a large number of patients are thought to be concentrated in the republic.

perception

The idea that there is an increase in cases of lupus in the country and the country is explained by specialists as a mere perception, the result of more doctors, healthcare facilities, coverage and spread of the disease, which also led to more diagnoses, without this meaning a real increase frequency.

They add that anyone can be affected by an autoimmune condition, and the only way to counteract this and other diseases is to realize that 80% of a person's well-being depends on themselves.

In the hands of each individual is the ability to eat a balanced diet, exercise, rest for long enough, avoid excess and take care of emotional health, five recommendations to follow to ensure good health.

It was created in 2018 and brings together half a thousand people

About 500 people are part of the Yucatan Lupus and Rheumatic Diseases Association, which seeks to guide, inform and connect those who have the condition so that they know they are not alone.

The group was formed last November and is made up of patients with various rheumatic diseases, such as lupus, found in Yucatan, Campeche and Quintana Roo.

Andrea Perez Erera, president of the association, states that 60 to 70 percent of members suffer from lupus and the rest from other rheumatic diseases.

He explains that one of his main goals is to support people in the care of their illness, which is why they have agreements with healthcare professionals in various fields who offer them low-cost advice.

Rheumatologists, nephrologists, psychologists, pediatricians and therapists are part of the experts who can be reached through the association, which also has an agreement with two laboratories, as conducting research into these diseases is burdensome.

Likewise, they receive discounted services from an ophthalmic company, as such conditions can affect vision, either because they directly affect the eyes or as a result of taking cortisone heavy medications.

The group meets every month to invite a specialist to speak. When this is not possible, they gather to celebrate the birthdays of the month, live together, answer questions, and support one another.

And that is, says Andrea Perez, many times family and friends do not understand the physical pain that patients experience, so talking to other people who go through the same makes them feel better understood.

Andrea Perez points out that drugs like lupus are expensive and not all members have social security services.

He points out that hospitals like the Regional Higher Specialty of the Yucatan Peninsula do not have lupus medicines in their catalog. This motivated them to send last May, with the support of Deputy Manuel Diaz Suarez, an initiative to the Union Congress to include treatment for the disease in popular insurance.

He added that two other associations in the country have sent similar initiatives.

Andrea says she was 18 when she was diagnosed with lupus. Doctors advised him not to become pregnant as this would bring him many problems; However, he stresses that with good management of the disease, patients can lead a normal life, as it did with her, who is already a mother of two. – Iris Chebalos Alvarado

contact

To learn more about the Lupus and Rheumatic Disease Association in Yucatán, you can check out their social networks and website and call 9994-20-33-27.

drugs

The medicines for these diseases are prescribed according to the characteristics of each patient, who, when he or she improves, consumes fewer doses or if he / she fails to observe the expected effects, changes it.

as a gift

It is in these cases that the partners donate them for the benefit of other members who receive them whenever the substance appears on their prescription.


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