You have to go well with the curved black roads in the Sandvik Nature Reserve to get back into the Meuller family. The house in the forest meadow is surrounded by tall grass and fences to keep dogs, chickens and ducks inside. The cat moves freely. Ticks too.
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Here, on his own plot, Peter Muller was infected with TBE almost six weeks ago.
He clearly remembers when he first knew of it. How he and a friend dug into the garden and suddenly – the feeling that something was wrong:
"I stood in the middle of the grass and just felt that something was wrong. All power vanished and I had to go to bed, says Peter.
The next day there is a visit to the health center on another occasion. When the doctor asks if Peter's health is otherwise he responds that there is something in the body. But it is left there.
Gradually, Peter is getting worse. Temperature increases, nausea increases and appetite begins to grow.
Muller's family is aware that they live in a red listed area, where the TBE case caused by tick bites was previously traced. All family members have taken twice two of the three doses of the vaccine needed for basic protection. The last dose, however, has fallen between the chairs.
"We took many other vaccines, and just forgot to take the last dose, both times. In addition, it is believed that "this does not happen to us," says Vanessa Muller, Peter's wife.
But at that time Peter began to doubt this thought. What could not have happened seemed to have happened.
But when he went to the health center and propelled to be tested for ticks, he was denied. Instead, he was given anti-emetic medication and received the explanation that he is probably allergic to the antibiotic he is taking against urinary tract infection. This despite the fact that fever and nausea began before the antibiotic course.
Days pass. Peter begins to lose words, is difficult to walk and is constantly reminded of a tangible headache.
– I felt that someone was straining a metal band around the brain and just pushing. I went through everyday life with the help of too many Ipren, he says.
"Daddy, you have to call the ambulance now"
In general, Peter applied for care four times in the health center and twice in the local hospital in Kungälv. During his last visit, Peter went to the health center to show how serious the symptoms were. He was hot and shattered uncontrollably. When the doctor said the samples did not show a bacterial infection, Peter gave up.
"The Health Center has adhered to the idea that this is a bacterial problem, although I have repeatedly stated that I have all the symptoms of TBE. The doctor then leaves the room to consult with another doctor. When he came back, he just asked what I expected to leave my visit. "Nothing," I answer and return home.
The twin pair Chris and Kollin, ten years old, see their father climbing the driveway, forgetting to close the car doors and go straight to the couch. The next night the worry is too great.
– I was scared, he was just lying there. That's why I told Dad you should call the ambulance now, Chris says.
When Peter was sent to the Kungwur Emergency Department, he had, after he had lowered the temperature, a 40-degree fever. I do not remember much of the course of events and the following days, but Vanessa Müller does it.
"The kids clapped together. All three of them looked at the ambulance and thought it was the last time they saw their father. At the hospital they did not know if she could do it the first day. I tried to stick together, but how do you relate to everyday life when everything is crazy chaos? Besides, we have a son who is sensitive to change. He puts everything at the top.
Health Center: "Do not Be Very Simple Diagnosis"
The hospital first thinks it is a herpes virus in the brain, but after a spinal cord test, brain inflammation can be observed caused by TBE.
Vanessa contacted the Kusten Health Center in Ytterby, in connection with the result Peter was looking for, and told me he would make a notification. She called on the health center to do the same.
Agneta Hamilton is head of operations at the Coastal Center. She tells the doctor she has difficulty seeing lexical motivation, but she keeps her open and has to discuss with the doctor responsible for infectious diseases.
– I feel sympathy for the family. It is a shock if you suffer from such a serious illness that is not being treated. I think it would be good for the family if the diagnosis had been made earlier, not because it affected the outcome but the sense of proper care.
She emphasizes that the health center is investing heavily in raising awareness of the CBA and the importance of vaccination – and that part of the task of the health center is to direct patients to hospitals if the disease is suspected.
Do you have a good awareness of the TBE symptoms in the health center?
"Of course, this is a well-known disease, and one has to take this into account, but if the symptoms are not specific, physicians involved may find it difficult to solve it. We can have at most one case a year, passing through the health center. But awareness must be very high because we are in an area where TBE can occur.
Is there any reason why you seem to be willing to direct patients to hospitals to test against TBE?
"No, but of course you mean hospitals if you seriously suspect a serious illness and you do not suspect it, yes, I can not describe this individual case, but it was not a very simple diagnosis. Then it's clear that it's about an experience with doctors, how long you've worked and how. It's not so fast that you become clinically ready.
READ MORE: "The expert:" Maybe it's the new highest year of the TBE case "
Now Agneta Hamilton wants to take measures to further raise awareness in the health center.
"As soon as they told me about the case, I got out of the break, got diary records, called my wife and talked to the doctor's office. Then I gathered all the staff and made an in-depth review of the situation and that we should consider TBE, she says, and continues:
– Many people probably feel they have to be simple but still want to have a diagnosis high in their consciousness. This is a lesson for all that you really need to have this diagnosis in the arsenal of the possible causes of these symptoms.
The way back
Collin enters the house in the forest meadow with sweat-beaded forehead after playing football with older sister Cheyenne 13. He gives his father a long hug. When his twin brother told us that their father had returned from the hospital, he did not think that was true.
Now Peter has been home for more than a week. His symptoms were ultimately relieved by a combination of antiviral and antipyretic drugs.
The number returns gradually. Time is getting better. But he is still tired of the brain, diminishing memory and losing his smell and taste.
– It's like a power button. Suddenly the energy is over, he says, and his eyes look toward the couch.
He was initially out of hospital in August.
– When I was diagnosed, my first thought was: can I continue working? I still have no answer to this question. If I'm a realist, that's not obvious, but I want to believe it.
Today Vanessa Muller is always grateful that she has returned her husband but still asks:
"Did he have to take so much stroke if the care reacted?"
This is TBE:
• TBE (Tick Borne Encephalitis) is a viral disease that can spread between animals and humans by tick bites.
• May cause inflammation of the brain, meninges, or both. Most people who get infections get mild pain with fever and headache and get better after a few days.
• It usually takes between four and ten days from the time of infection until you get sick, but it may take up to a month.
• About one third of all infected viruses spread to the brain. Approximately a week after the first symptoms disappear, symptoms such as fever, severe headaches, vomiting, confusion, concentration difficulties, light sensitivity, and sound sensitivity usually appear.
• There is currently no way to cure TBE after it has exploded, but the body should treat the infection itself.
• If you have had TBE once, you are immune to the end of your life.
Source: Public Health Authority and Care Guide 1177.